Respiratory Disease
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Thursday, 07 August, 2008


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Asthma-Respiratory


Associations
  • The AAAAI has more than 6,300 members, making it the largest professional medical specialty organization in the United States, representing allergists, clinical immunologists, allied health professionals, and others with a special interest in treating and researching diseases such as allergic rhinitis, asthma, atopic dermatitis/eczema, and anaphylaxis.
  • American Academy of Pediatrics-an organization of 60,000 pediatricians committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.
  • A professional membership association for respiratory care professionals and allied health specialists
  • The College is the leading resource for the improvement in cardiopulmonary health and critical care worldwide.
  • The American Lung Association® is the oldest voluntary health organization in the United States, with a National Office and constituent and affiliate associations around the country.
  • The American Thoracic Society (ATS) and the American Lung Association (ALA) maintain a joint Washington Office to advocate on legislative and regulatory issues.
  • The Society of Thoracic Surgeons is a not-for-profit educational organization representing more than 5,000 surgeons worldwide who provide heart, lung, esophageal, and other surgical procedures of the chest.

  • Metasites
  • The Respiratory Diseases Specialist Library is being developed to provide high quality, evidence-based information on all of aspects of respiratory diseases.
  • List of lists of respiratory resources on the Internet, divided into large, medium and small lists.
  • List of lists of respiratory tract resources on the Internet for the general public and health care professionals.
  • The College is the leading resource for the improvement in cardiopulmonary health and critical care worldwide.

  • Practice Guidelines
  • American Thoracic Society Guidelines
  • RESPIRATORY CARE is a peer-reviewed journal published by the American Association for Respiratory Care (AARC). AARC approved guidelines for a variety of respiratory therapy procedures.
  • AGREE stands for "Appraisal of Guidelines Research and Evaluation". It originates from an international collaboration of researchers and policy makers who work together to improve the quality and effectiveness of clinical practice guidelines by establishing a shared framework for their development, reporting and assessment.
  • The Guidelines International Network is an international not-for-profit association of organisations and individuals involved in clinical practice guidelines. Founded in November 2002, G-I-N has grown to 67 organisational members and partners representing 32 countries from North and South America, Asia, Europe and Oceania - plus WHO.
  • The National Guideline Clearinghouse™ (NGC), a public resource for evidence-based clinical practice guidelines. NGC is an initiative of the Agency for Healthcare Research and Quality (AHRQ), U.S. Department of Health and Human Services.
  • The National Institute for Health and Clinical Excellence (NICE) is the independent organisation responsible for providing national guidance on the promotion of good health and the prevention and treatment of ill health (for management of diseases within the National Health Service in England and Wales).

  • US Government Sites
  • Information for Physicians and patients
  • The Center for Drug Evaluation and Research provides information about new and generic drug approvals, FDA news alerts, regulatory legislation, and guidelines for new drug applications.
  • MedWatch is an FDA Web page that provides timely information about product safety alerts, recalls, withdrawals, and important labeling changes on the drugs and other medical products regulated by the U.S. Food and Drug Administration.
  • As an agency of the U.S. Department of Health and Human Services, the NIH conducts research into preventing, detecting, diagnosing, and treating diseases and disabilities.

  • Rare Disorders
  • Federation of voluntary health organizations helping people with rare diseases and assisting the organizations that serve them.
  • The goals of ORD are to stimulate and coordinate research on rare diseases and to support research to respond to the needs of patients who have any one of the more than 6,000 rare diseases known today.
  • Database providing a catalog of human genes and genetic disorders authored by the Johns Hopkins University Medical School and developed by the National Center for Biotechnology Information (NCBI) at the National Library of Medicine (NLM).
  • Established by the National Human Genome Research Institute (NHGRI) and the Office of Rare Diseases (ORD), the Genetic and Rare Diseases Information Center employs experienced information specialists to answer in English or Spanish questions from the general public, including patients and their families, health care professionals, and biomedical researchers.
  • The Genetic Alliance Web site has a searchable database of hundreds of disease support groups, representing more than a thousand diseases, with links to all of their Web sites. It also offers general genetic information.
  • Clinical, research, and educational resources for genetic counselors, clinical geneticists, and medical geneticists.

  • Clinical Trials
  • National Library of Medicine (NLM) clinical alerts are provided to expedite the release of findings from NIH-funded clinical trials where such release could significantly affect morbidity and mortality.
  • Use this site to find a wealth of information about clinical research, including listings of more than 41,000 active industry and government-sponsored clinical trials, as well as new drug therapies in research and those recently approved by the FDA.
  • ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers.
  • This FDA website provides information, contacts, guidelines, educational materials, and FDA-specific regulations relating to good clinical practice standards in clinical trials.
  • Site aiming to increase the availability, and promote the exchange, of information about ongoing randomised controlled trials including the NHS in England and US ClinicalTrials.gov.
  • ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details.

  • Publications
  • Published by the ACCP this site has tables of contents, abstracts, instructions to authors.
  • Online resource including articles, Q&As and a letters section
  • The journal welcomes studies on asthma, chronic obstructive pulmonary disease, cystic fibrosis, genetics, infectious diseases, interstitial lung diseases, lung development, lung tumors, occupational and environmental factors, pulmonary circulation, pulmonary pharmacology and therapeutics, respiratory critical care, respiratory immunology, respiratory physiology, and sleep. The journal will also welcome state-of-the-art reviews on related topics.
  • The ERJ publishes clinical and experimental work dealing with the whole field of respiratory medicine, including cell biology, epidemiology, immunology, pathophysiology, thoracic imaging, paediatric pneumology, occupational medicine, intensive care, sleep medicine and thoracic surgery.
  • Clinical Pulmonary Medicine provides a forum for the discussion of important new knowledge in the field of pulmonary medicine that is of interest and relevance to the practitioner.
  • International peer review journal for health professionals in all aspects of respiratory medicine.
  • Resources about pulmonary hypertension. Includes articles, research, glossary of terms, and message boards.



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